Something Like That

This heatwave that we’re currently going through… it’s a pretty good way to explain how I’ve been feeling over the past few days. Just go outside, walk around your property for about 15 minutes, then stand there a while… and that’s basically how I’ve been feeling each day all day. Again, not bitching, just trying to describe it in a way that people can understand.

Thankfully I’m almost half way through the process, so at least there’s a light at the end of the tunnel that I can look forward to. No matter what results I get, at least I can get back on my thyroid meds after the scan has been completed. It makes me feel bad for folks who have suffered with thyroid issues all of their lives, because the constant nausea, overheating, and dizziness… it’s no joke. Not thrilled that it has been made crystal clear that this will indeed be a medication that I’ll be taking for the rest of my life though.

I’m a cheap-ass, so I usually wouldn’t do this, but last night I turned the thermostat all the way down to 68 when I went to bed. I knew I’d be sleeping at least part way into the day and the house would heat up quickly, but despite it staying that cool in the house – I woke up early and completely drenched in sweat again. (Also… gross.) That’s why I mention how far along I am in the process… because if I didn’t know that there was an end to this, it would be some scary shit.

I’ve been drinking a lot more water, so the muscle spasms and dehydration hopefully won’t become an issue. It’s pretty shitty though, that the insurance industry has decided that this is an acceptable thing for patients to go through while preparing for their second radiation dosage. The alternative way, staying on your meds and just getting two injections before the scan… that costs several thousand dollars, so I guess you can’t blame them for trying to find somewhere to cut costs in what has likely been a very expensive surgery.

Again though, knowing that this is a temporary thing for me, it really makes me feel for those folks who don’t have insurance at all, and even for the people that do but have a chronic condition that still isn’t covered by their plan for whatever reason. As with most things like this, it’s something that we don’t think much about until it starts to affect us personally. So, yeah… still feeling super awful… and I feel like it’s continuing to slowly get worse, but I’ll be good as long I just keep reminding myself…

“It’s only temporary. It’s the lack of meds, not anything more scary. You’ll have more answers soon. Just (n) more days and this will all be over. Consider yourself blessed that you’ve made it this far. Plenty of other people have it worse than you, and it’s not temporary for them. Yeah, it sucks… but don’t be a pussy. It’s only temporary.” etc…

I’m trying to stay positive. I need to stay positive.

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Checking Off Boxes

Typical “workers comp, beginning of the month, get my scripts filled” day today. Three different calls to the pharmacy, issues with my information in the computer, problems with certain ones not being approved… same bullshit as usual, except due to the incorrect information in their system I even had to stop in myself, with receipts and printouts and crap from last month. The folks that work there are great. It’s never the people there that I have a problem with… and after my visit we think everything is now updated, correct, and in process of being authorized – so maybe sometime today I’ll actually be able to pick them up.

I had to be out today anyway, so stopping in to get all this stuff sorted out wasn’t a big deal. I mean, I actually feel kinda bad for them – with how much of a pain in the ass “my case” is for them each month. It makes me wonder if any pharmacies have ever decided that certain customers’ situations were just too much work, too many calls, and too big of a PITA – and just told them to take their business elsewhere. ‘Cuz I can see how they could feel that way about me, if they weren’t such understanding and helpful folks.

But at my other stops, along with having several vials of blood drawn, we’ve started getting a lot more things set in stone. I’ve now got dates (if not exact times, yet) for the next blood draw, the administration of the radiation dose, how long I’ll need to stay away from people (which included rearranging another unrelated doctor appointment), when the full scan at FMC will be, and then the followup with my main thyroid doctor after all of the results are back and interpreted.

It’s surreal… how this is such a “big deal mind fuck” thing for me as I’m going through it, yet I’m just one of many. There are enough people needing this kind of treatment that once a week, every week, it’s radioactive “dosing day” for thyroid patients at FMC. But for whatever reason, even as you’re out in town, seeing other people doing whatever… it’s easy to feel like you’re the only person going through this shit, while actually we probably pass by people each day who are going through the same thing or worse. Working in nuclear medicine, giving the doses… I can see how that job could start feeling pretty heavy after a short while.

Rambling Elaboration

Yesterday’s entry was admittedly pretty bleak… but not all of yesterday was completely full of suck, so I figured I should come back in here and sprinkle a little bit of that “good” around – even though I know it won’t really do much to balance out the tone of the blog lately or overall. πŸ€·πŸ»β€β™‚οΈπŸ˜•

Knowing that soon I’ll be runnin’ completely without my thyroid meds, there were a few things inside and outside of the house that I wanted to get to… just in case the next several weeks are as “challenging” as I’m expecting them to be. 😟 The inside stuff was whatever… but the outside stuff, that’s the kind of stuff that kicks my ass even when I’m at my relative best these days. It also didn’t help that it was still 87 degrees in the late afternoon, when I finally went outside, since “waiting for the heat to die down” wasn’t really gonna work unless I intended to do my yard work in the dark.

When they took out my line of bushes, they plucked about a 1/3 of them, and the remaining 2/3 were cut off at the base – as close to the ground as possible. I told Jason that I had plenty of poison spray when they were doing it, and he suggested that after they were done I should probably go out and hit all the remaining “nubs” in the ground, to discourage them from trying to make a comeback – and to hopefully make them brittle enough that anything still above ground will eventually just start breaking off. So, that was mini-project number one, and luckily I didn’t need my cane nor did I have any neighbors eyeballing me as I worked.

I still had juice left in the sprayer when I was done, so I started hitting weeds along the fence, under a bunch of the evergreen bushes, all over the empty-but-weedy spot (where a big bush used to be) beside the garage, and then all around the AC unit just to make sure nothing considers growing up around it. I was sweating balls at this point. Actually, I was sweating balls within the first 10 minutes of being outside… but yeah, it was time for a break in the cool air inside.

It felt nice, but when it became obvious that I wasn’t gonna stop sweating, I sucked it up and went back outside. I’ve got a couple different sprays for spiders, wasps, bees, and ants – so I treated all the areas that needed it. 😷 Front porch got most of the spider attention, back porch had the bees, and then I sprayed what amounts to an “ant barrier” at the bottom and lowers sides of all of the doors that go outside or into the garage. (They’re a fan of Maven’s messy eating habits, usually leaving bits of cat food on the floor for them to sniff out and come after.)Β Bugs don’t really count as “critters” I suppose, but I still hate to be an exterminator. πŸ˜• But when they won’t stay outside, or try to take over certain areas when they do, they’ve gotta go.

Don’t you love how I can take “Sprayed some poison on the bush stumps and weeds, then killed some bugs” and turn it into a multi-paragraph blog entry? This time it’s intended… to make it sound as time-consuming and exhausting as it actually was. πŸ˜“ I ended up sweating so much that the mosquito repellent finally quit working, but I had done everything that I wanted – so it was time for a shower, and to stop friggin’ sweating.

Throughout the process, I learned that I have another mutant ability. πŸ™„ I can work outside for a little less than an hour, come inside into the cold air conditioning, take a shower to get all the stink, grass, and stray poison mist off of me… but I can continue sweating for a full two hours after everything was done and I should have been good. πŸ€¦πŸ»β€β™‚οΈ I’m guessing it’s a thyroid thing that I just hadn’t discovered yet, since I’m usually too gimpy to work that much outside. But yeah… cool shower, cold air, and two more hours of sitting here with a towel to keep drying myself off.

It’s fine though… because as much as this all might sound like bitching, it felt good to accomplish so many things when there were so many other things trying to mentally or physically discourage me from doing so. Until I started to not be able to do a lot of things, I didn’t realize how important that it could be to be able to do something with purpose. So even though this stuff is probably most people’s typical weekend, it’s my little thing to grab hold of and feel good about. πŸ€·πŸ»β€β™‚οΈ

And, obviously, I have to take what I get when it comes to stuff like that these days.

Hands Off The Controls: Autopilot Has Been Engaged

I didn’t get to sleep until almost 6am this morning, and I had posted a somewhat moody blog entry about an hour before that… but I went ahead and deleted it when I woke up, deciding that I should wait until I had a little more sleep, time, and information under my belt before commenting on the stuff I was commenting on.

It was just really bad timing last night… first, forgetting to drag the trash buggy out to the road, so I ended up doing that around 3:00am. And of course since I was out there, I grabbed whatever was in the mailbox from the past couple of days. And the letter on top had to be from my WC attorneys, letting me know that my mandatory “independent” WC exam has been rescheduled. That was the appointment where I got up at dawn to drive to the NW side of Columbus, with my bum knee at the time, and they cancelled on me about five minutes away from their office. 🀨 Yeah, so that’s now rescheduled near the end of the July.

It had actually slipped my mind, since my brain has been in a state of constant anxiousness regarding my lengthy but (hopefully) finalΒ thyroid cancer treatment beginning. So with that and other other crappy stuff on my mind, having had to deal with the kitten situation yesterday, and then just not being able to sleep because of all of it – seeing that envelope pushed me past sad, mad, frustrated, nervous, or whatever… eventually to just numb. 😐 It’s happened before… I’ve simply “felt” to the point of no longer being able to feel. πŸ€·πŸ»β€β™‚οΈπŸ˜• And I don’t know… with the way I’ve been, numb is probably better.

I’ll let my attorneys know that the appointment is just days before I’m due to begin the radiation part of my treatment, so we’ll see if WC still demands that I show up – or if they’ll decide to wait until it’s over and I’m at what they’d consider my “normal” physical self. The latter would give a more accurate representation of how my disability and meds affect me, but who knows what they really want.

The last handful of entries should give you a good idea of where I’m at and where things are heading. I don’t know how much time I’m going to be spending online in the near future, and there’s a good chance that I’m going to be even more difficult to reach than usual. I apologize that I’m probably going to come off as more inconsiderate than typical… but I can’t really do anything for anyone, I can’t see how my presence right now could possibly be a good thing… so I might end up in my bubble for a while. 😐 If anything significant happens though, good or bad, I’ll make sure I at least make a small post – just to keep the people who still care in the loop. Try not to worry about me though. Whatever happens next is all out of our hands.

Almost As Good As Medicine

When I’m having a bad day, and my energy levels just aren’t there, often I’ll feel bad for Maven. 😿 She’ll wanna play or follow me around or whatever… but since I’m not really doing anything – sometimes she’ll just sit and stare at me, sometimes she’ll flop down next to me, and sometimes she’ll just piss off to the basement to do who-knows-what for a couple of hours. 😏 But it’s weird that a cat, with just a certain look, can make you feel like you’re letting her down in some way.

But this weekend I’ve kept busy (off and on) and was doing enough “stuff” that she was actually getting a little bit twitchy. 😾 She doesn’t like change either, especially when it probably doesn’t have any reason to her, so whenever I would sit down and take a break she would join me. Almost as if she was relieved that I “stopped doing stuff” so she didn’t have to wonder what the heck I was up to and when I was going to stop. 🀨

You probably have to be a “cat person” to really get this… but this cat, when I first got her, she didn’t like to have her belly touched – let alone petted, rubbed, or scratched. 😯 But over the years, with just me and her here, it’s molded her into a critter who shares a lot of personality traits with me. Plus she absolutely trusts me now, and has turned into a kitty that (most of the time… heh) loves belly rubs. πŸ˜„

So, shortly after I finished folding, hanging, and putting away my laundry… using up the last bit of oomph that I had for that moment, I sat down on the floor for a short break and ended up with this in my lap… 😏😊

Sorry about the large blurred edges, but the only way I could record this properly was in portrait mode… and if I uploaded it “as-is” the video would be taller than the height of the actual page. But anyway, knowing how she used to be, seeing how she is now… this is one of the very few things that can take my mind off of all the bad things swirling around inside my brain, to where all I’m thinking about is how lucky she is to have me, and how lucky I am to have her… and that sometimes I don’t make too bad of a critter daddy, I guess. 😊

Nerves

As of my last post, I was feeling the then-immediate relief of not having to learn of the plan for my next session of treatment that day. I thought that might make my weekend a little more relaxed, but with each hour closer that Monday gets – the more my nerves started messing with me. 😐 I’m still good, but knowing that tomorrow I’ll be getting the call, it did change what I ended up doing with my weekend.

I’m aware that I could be making a bigger deal out of this than it’s going to end up being, but the alternate is also true… so the best course of action, one that starts me out on better footing before whatever’s next, was to use these two days to get the house nice. πŸ€·πŸ»β€β™‚οΈ I don’t know if it’d be this way for everyone, but if I’m really negatively affected by stopping my thyroid meds (and most everything that I’ve heard so far is that I will be) then it’s important that the house is clean, laundry is done, dishes done up, etc.

It’s simple… feeling shitty feels shitty, but feeling shitty while also being stuck in a dirty house, with unwashed dishes taunting me, baskets of laundry waiting on me… that would just be so much more shitty for me. πŸ˜₯ Like I said, it might not be something that would bother other folks, but it would bother me more than you can even imagine. 😣 One bit of good news, and I’ll give partial credit to the way I’ve tried to keep moving, but I’m finally walking completely without a cane again. πŸ™‚ There’s still some pain, and I can still feel the unpredictable weakness… but it’s good that I’m off the meds I had a bad reaction to, and that I’m getting along much better when it comes to my knee. (Which is surprising, honestly, the way that I pretty much killed it the night that I was in Columbus several days ago.) See, it’s not always bad news around here… 😏

I am disappointed that I wasn’t able to visit a couple people that I had put on the “possibility” list for the weekend if I was feeling alright, but I’m staying hopeful that this next session of treatment will be able to conclusively “clear” me. πŸ‘¨πŸ»β€βš•οΈπŸ₯ΊπŸ™πŸ» Then I can hopefully work at getting my head in a better place again, eventually feeling more like a previous version of me, and potentially more able to make random trips out of the house without the anxiety stopping me before I even make it to the door. πŸ˜‘ As much as I want friends and family to “get me” when it comes to all my twitchy problems, they shouldn’t have to put up with the way that I am as much as they do. 😟 “Clean bill of health” (at least when it comes to my thyroid stuff) could do wonders for snapping me back to something more close to normal. πŸ€•Β That’s the hope anyway…

Adjustment

At my most recent shrink appointment, he prescribed Paxil and Lamictal. He spooked me with the Lamictal though, so I haven’t started taking it yet. Serious talk about the possibility of a rash that could mean something very bad. 😳 So it’s a difficult medication to “sell” when someone already has high anxiety. But the Paxil, the first week (which is now done) I was to take only one in the morning. Now, I’m supposed to take one in the morning and one at night. I’m hoping that will help the problem that I’ve noticed all this week.

I’m also going to start the Lamictal tonight as well. I just never like starting two new meds at the exact same time, because then whether I experience a benefit or a side effect, you can’t know which one was the cause… although I suppose sometimes you don’t get the benefit or side effect unless you’re taking both of them. 🧐

This past week, even though I usually slept well, every time that I’d wake up the next day I would have instant severe anxiety already happening. 😣πŸ˜₯ Now, it’s not like this is the first time that this has happened… and I know it sounds bad to describe it this way, but sometimes when anxiety is so bad, it’s just the disappointment of waking up that triggers it. 😐 Oof, yeah, that sounds way worse than I intend it to. But yeah, it was random before, but it’s been a constant since I’ve started taking the Paxil in the morning. So hopefully now that I’ll be taking an evening dose as well, maybe that’ll change how I wake up.

That’s the one positive though… as long as I take it immediately upon waking up in a near panic attack, the feeling actually goes away relatively quickly. πŸ€·πŸ»β€β™‚οΈπŸ™‚ So I’m still hoping this will be something good, and it’s just a matter of getting on the right dosage. And yeah, it’s probably a little weird that I’m just putting this all out here for anyone to read – but it’s not like I’ve tried to keep the “twitchy” side of me a secret. 😏 And I really do know the majority of the things that have triggered it (and keep triggering it) so it’s not like I’m staggering around in the dark, unable to see the boogeyman.

It’s not a permanent solution, because it’s not a good solution, but part of me getting my head straight is by cutting myself off from people for a while. 😞 As I’ve described it before, my empathy is like a horrible super power that I’ve got… and when I know so many people that are going through so many awful things, I absorb the feelings that they’re experiencing regarding many of those things. 😣 Add that on top of my medical stuff, my workers comp stuff, my disability, etc… and unfortunately the easiest way to reduce anxiety is by avoiding the sources (and even potential sources) other than my own. πŸ₯Ί Then (I’m hoping) once I’m in a better place, I’ll be better able to function like a “normal” human and bring myself back into the fold. I don’t know if it’s a good plan, but it’s a plan…

EDIT:Β  Jesus… maybe I’m not quite ready to risk this Lamictal. 😯 I shouldn’t have googled.Β