Vicarious Eavesdropping

That little nap yesterday afternoon…Β πŸ˜’Β screwed up my entire night. Didn’t fall asleep until about 3am, and I was up and down almost every hour on the hour from then on out. I don’t know if I was dreaming, since I was watching a huge storm front going through Illinois and Indiana as I was getting sleepy, but it was either that or I just barely slept through what sounded like a huge downpour. πŸŒ§οΈβ›ˆοΈπŸ‘πŸŒ§οΈπŸŒ§οΈΒ As if someone was spraying a hose against the side of my house. (Probably just my imagination.)Β Meh… now I’m just tired and grumpy and have a friggin’ neck / headache again, but hey… at least it’s Saturday. πŸ™‚πŸ€·πŸ»β€β™‚οΈ

Took my morning meds and some Aleve, so I’ll be feeling better soon. Also, I’ve got a package on the way. 😯 And how can you be in a shit mood when you’ve got a package coming? 😁 Before bed each night, I usually spend a while listening to the scanner, and relaying any interesting bits to Amy, my night-time / insomnia texting wife. 😏 We use that term jokingly, of course… but everyone (if they’re married) has a real spouse, but then you often have a “work wife”, an “internet wife”, a “texting wife”, etc. Anyway, the scanner is great, but I’m far enough from town that reception is sometimes a problem. πŸ€¨πŸ“»

So I found a cheap, wide-band, glass mount antenna with the bitty SMA connector that my Uniden HomePatrol 1 uses – and it’s supposed to arrive today. Hopefully by one of their delivery people that has the GPS system where it’ll pop up a little map, showing where they are, and how many stops until they reach you. πŸ€“πŸ§­πŸšš Gonna tuck the antenna behind the curtain on the picture window, which somewhat faces towards town, so hopefully it’ll give me just enough boost that I’ll stop getting garbled transmissions.

At this point, $20 was about the limit that I was willing to throw at a possible solution, but I did also consider that my metal awnings could possibly used with a magnet mount ground plane antenna. But not only does that start to get outside of my wheelhouse when it comes to antenna knowledge, but they’re also more expensive, and I don’t have an easy way to run the connecting cable into the house. Besdies, I’m not sure I care enough about “perfect reception” to bother doing whatever I’d need to do to get it perfect. 😏 Most services in the area have gone to digital broadcasting anyway, so I imagine it’s only a matter of time before they start using encryption as well – which would make my receiver useless. πŸ˜• Gone are the days of getting a $20 “Bearcat” scanner at a yard sale that would give you access to almost everything you’d wanna listen to.

Okay, enough rambling… just wanted to bang out an entry to help me wake up and get my day started. I doubt I’m gonna be out of the house much over the next couple of days, having no appointments or obligations (and also wanting to avoid the bizarre 90 degree “fall” weather), so that gives me even more reason to anxiously await the arrival of that antenna for one of my toys. πŸ€“πŸ˜Œ It’s honestly too cheap, so I’m not expecting much, but if it gives me just enough gain re: these two specific channels it’ll have been worth it.

Makes me wish for a “Fall Hamvention” … but I probably wouldn’t go to that one either. πŸ˜…Β I miss Hara Arena.

You Never Get Used To It

(Oh yeah… this is quite a rambling one.Β  Strap in…)

While I was off of my thyroid meds, losing energy with each day that passed, preparing to have my second cancer scan done, as you may remember – I still had to drive over an hour up to NW Columbus, to go to the “Independent Medical Evaluation” initiated at the request of my former employer’s WC insurer. πŸ˜’πŸ€’ For those who haven’t been through it, it’s essentially one of the methods that can be used to try to get medication or treatments disallowed from a claim, based off of a report from a doctor (like in this instance) who has seen you as little as one single time. 🀨 That almost always sets up an Industrial Commission hearing, where (in my case) that report will be compared against the records of my own doctor, who has been treating me consistently for this work injury and disability for well over a decade. 😯

Of course my thoughts were more focused on the upcoming cancer scan at that point, so I went up, had my exam, went back home, and then mostly forgot about it while I dealt with my other medical concerns. But upon collecting my mail from the box a couple of days ago – I saw that enough time had passed for that doctor to have generated his report, which is easily 30-40 pages (if not more), and have copies sent to me, my attorneys, and my own doctor. I waited a few days to open it, because I knew there would be nothing good about it, nor would there be anything that I could do about that fact. 😟 It might as well have been labeled “Envelope Full of Frustration” but I finally made myself open and read it all yesterday.

I’m going to sugar-coat the shit out of this as I continue. πŸ™„πŸ˜ For my second pass through this thick report, I grabbed a yellow highlighter and began to mark and number the areas where more info was needed. 🧐 Whether it was adding context, pointing out inconsistencies, noting conflicting statements within the same report, or bringing attention to things that were implied, inferred, or assumption… I ended up with 48 different sections that required a response. And, unfortunately, there were several things that were simply false. Absolutely false. But still written in this report as if it were fact. 😠 I’m not saying that this doctor just pulled some things straight out of his ass, but it’s a shame how many “inaccuracies” were made by someone that shouldΒ have the presumption of being knowledgeable and accurate, especially given the duty that he’s performing and the way it could affect the future of anyone that he evaluates.

So now my copy of that doctor’s report has 48 highlighted areas, to go along with a numbered “rebuttal report” that I created to address each of those problem areas. So when I give it to my attorneys, they’ll be able to read my comments right along with the numbered and highlighted areas on the original report. πŸ€“ And despite having another doctor appointment at 11am this morning, I was up until after 2am last night… because correcting or clarifying (what I believe to be) inaccurate things in that report is really the only thing that I can do right now when it comes to “defending myself” or possibly helping my attorneys with their argument points. πŸ€·πŸ»β€β™‚οΈπŸ˜ž But yeah, once I started, the areas that needed my attention just kept coming, and I wasn’t going to stop and go to sleep until I had addressed everything that I felt needed it.

Of course my doctor will write a rebuttal report… something that he’s done many times before, to the point where he’s often repeating himself – because the facts are the facts, and they don’t change over time. But when there’s a hearing, it’s just expected that the doctor of record will submit a report, so he’s unfortunately stuck in this situation just like I am. πŸ˜• Thankfully, my doctor is awesome. And like me, he’s not a fan of having his words twisted, his knowledge and methods belittled… and he’s definitely not a fan of any claims, implications, or “facts” that seem to be based on little-to-no actual evidence. So not only will he write a truthful and accurate rebuttal based on all of the medical evidence, but it also serves as a way for him to “defend” himself – which is the same feeling that I have, and why I wrote my index of rebuttal points. 🀨

I have a ton of other things that I would like to say about the doctor’s report, but it’s in my best interest to just stop at this point. I’ve covered the basics, and you’re more than welcome to imagine the non-sugar-coated version… but even if you did that, there’d still be some things that would legitimately shock you. So now I can only hope that my rebuttal points will be helpful and useful to whichever attorney ends up representing me at the actual hearing. πŸ‘¨πŸ»β€πŸ’ΌπŸ‘©πŸ»β€πŸ’ΌπŸ—’οΈπŸ‘¨πŸ»β€βš–οΈΒ (And I’ve always felt the “commission” folks do seem to care as well.)

But the law firm that represents me is great, and we’ve (knock on wood) got a great track record from the beginning through today… so I know that they’ll have already picked apart many of the same things that I’m bringing attention to, but there still might be something that I say here or there that will contribute to the arguments that they use on the day of the hearing. πŸ€·πŸ»β€β™‚οΈ And at the very least, having more information “straight from the horse’s mouth” will be beneficial in general, since we usually only have about a half hour to sit and quickly discuss the case before the hearing starts.

It would be hard for anyone to find the words to accurately express the feeling and level of frustration that comes along with this situation. πŸ™‡πŸ»β€β™€οΈ To have decisions being made by other people, about things that will dramatically affect your future, knowing that “the truth” is the only weapon that you have… it’s such a helpless feeling, especially when you’re already feeling pretty damn helpless most of the time, due to the disability and pain that this whole thing is about in the first place. 😒 So other than the info I’ll be giving my attorneys, it comes down to sitting, waiting, and hoping… and there’s nothing relaxing or reassuring about that. 😞

Any good luck or positive juju that you want to mentally send my way is greatly appreciated. πŸ€žπŸ»πŸ™‚πŸ™πŸ»

Nuclear Medicine

Had the same lady as last time give me the radioactive iodine dose today. I’m not sure if they all act this way, but she’s fun… not intentionally, but in the way that she makes it feel so dramatic. 😏 And I get it, she works in that department every day, so a person’s gonna want to keep as far away from all the radioactive stuff as possible, so I don’t blame her. πŸ‘©πŸ»β€βš•οΈΒ …Β πŸ₯’πŸ’Šβ˜’οΈΒ Β πŸ€’Β It also has the side effect of making it seem like this pill is reallyΒ going to be doing something, whatever that something may be.

Before they even bring the pill in, she had me go through a practice run – having me put my hands exactly where they need to be, telling me how to get the pill out of the container without touching it or anything else, and then how to gtfo while having to pass near as few people as possible. Of course once the lead container is opened and the pill is out, she stays as far away from it and me as possible – but, probably just from habit, that’s mostly how she acts even through all of the tedious paperwork and talking beforehand.

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Don’t mind how dusty my entertainment screen is (or the custom commands 😏), but I’ve decided to take this as a sign… this was the first song that played (at random)Β in the car as I left the hospital parking lot. (Video Link: Back to Life – Hailee Steinfeld)Β I’ll even give credit to Mom, since I was talking to her on the way in, asking that if she was able to give any help guiding the medicine during the process this morning, that I’d be happy to take it. 😌 Oh, and they remarked how shit my thyroid levels are (in a good way, for the dose/scan anyway) and it’s no wonder I feel like utter shit and fall asleep all the time. So, there’s that. πŸ€·πŸ»β€β™‚οΈπŸ˜Ÿ

Still can’t start up my meds until after the scan, and until after the doctor has reviewed the results to make sure that they “came out okay” for lack of a better term. It’s a typical long test where you have to lie still in a tube for about 45 minutes, so there’s always a chance there could be some sort of blur or error or something, to where they’d wanna do it again in a few days or whatever. 🀨 But with any luck, by this weekend I’ll be on my way “back to life” at least in as far as my thyroid and energy levels are concerned. πŸ€πŸ™πŸ»πŸ™‚

Unfortunately, I’ll have to avoid stuff likeΒ this until I’m less radioactive. 😟 Wish she could understand.

Creeping Toward The Finish Line

I figured I better get on here and make an entry while I’ve got the juice to do so. I know I said I wouldn’t bitch after doing that weed spraying outside the other night, and I’m not doing this to bitch – just to update… 😏 but cripes, that little bit of work messed me up somethin’ fierce. πŸ˜“

Overheated, energy sucked away, yet even with my full compliment of evening meds I laid awake all night, until about 9am the next morning. πŸ˜’ I got a couple hours sleep at that point, but still feeling exhausted I actually took that day’s evening meds and went to bed at 7pm. πŸ™πŸ»πŸ€·πŸ»β€β™‚οΈ Had to be at the hospital for labs the next day, so I didn’t want to take any chances that it would be another sleepless night.

The whole night followed the routine of falling asleep for a couple hours, then waking up for one… lather, rinse, repeat. By the time I was actually able to wake up enough to get my day going the next day, I had spent a total of 15 hours in bed 😳 yet woke up feeling more drained than when I originally went to bed the night before. It’s amazing how screwed up my body has become, from just missing that teeny tiny single thyroid function replacement pill each day, and obviously I haven’t hit the bottom yet.

But I made it to the hospital, got my blood drawn and labs started, and on the way out I actually ran into a friend in one of the hallways. She was on her way to see one of her family members, but I was so out of it I barely even realized when she waved as I passed her. She looked like she wanted to be there about as much as I did, and the way I almost just walked past her, I had to comment that we were like “The Walking Dead” just lumbering past each other. πŸ§Ÿβ€β™‚οΈπŸ˜ Not in any sense of the seriousness of why I was there, but more that I was just oblivious and drained and grumbling to myself in my head, to where I passed literally two feet from one of my friends and almost didn’t even notice.

But the past 48 hours have made me toss away (for now, anyway) that urge that I always have… that I need to do something useful or productive each day, no matter how shitty I feel. Yeah, F that. I gotta be realistic, because with this shit there is no “mind over matter” that will allow me to pull energy from some mysterious reserve. πŸ˜• It’s really okay though – because now that it has proven itself to me, that there is no fighting against it or whatever… that’s just how it’s gonna be until I can get back on the thyroid meds. πŸ€·πŸ»β€β™‚οΈ It’s still indescribably awful… but like I keep reminding myself… it’s temporary.

But just so people aren’t concerned, I am still able to drive, so if there’s an emergency or I need to get food or whatever – Lancaster has plenty of drive-thru joints that I can go to without leaving the car… and if I really need anything beyond that I can always hit up Toni, or Genesee – who has reminded me that she’s still got plenty of people around here that would be willing to help out if needed. I mean, it won’t come to any of that (at least I don’t think it will) because as long as my labs come back the way they want – I’ll get the radiation dose next week and will only have to make it through that following Thursday.

Heh… how lame. πŸ™„ Sitting here, happy that I had enough mental/physical oomph to write this. πŸ˜πŸ€·πŸ»β€β™‚οΈ

I Have My Reasons

Still hangin’ in there, still waiting through this process… 😟 of which the next step will be Monday, when I’ll get (what should be) my final lab work done before they decide if my levels are where they need to be for the radiation dose the following week. πŸ’‰πŸ˜¬πŸ“‰ I’m more anxious about the test than I am the dose later, simply because there’s a chance my levels won’t be right – which would mean going even longer without taking my thyroid meds, until they are. 😐 Without elaborating, I really, really don’t want to have to do this a day longer than I absolutely have to.

Unless it’s unavoidable I’m pretty much just staying at home and trying not to move around too much, to keep from throwing everything even more out of whack. I can’t fake my way through feeling okay right now, so staying at home lets me feel how I feel, protects me from anything that might make it worse, and protects others from having to see me like this, acting how I actually feel. πŸ₯Ί My “game face” is out of order. (I haven’t even been on Facebook for days and days, and the last time was to just let everyone know I was okay. I really hate how this has been affecting my interactions (or lack thereof) with friends and family.)

And I don’t blame people for being concerned, or not knowing how to react, when the topic is cancer and there’s still more “unknown” than “you’ll be fine” at the moment. But this current craptacular phase of “bleh” isn’t (likely) caused by anything cancer related, but is actually due to not being able to take the thyroid meds that I need. But to everyone else, I’m sure it looks and feels as if cancer is kicking my ass, which leads to all sorts of difficult and crappy emotions.

Toni and Shannon invited me out for a bonfire last night, and in my heart I wanted to go… but I wouldn’t have been able to conceal how I felt, physically or mentally, and I honestly didn’t want to be a buzzkill on their evening – which is what I likely would have been. πŸ˜’ If it turns out that the doctors weren’t able to remove all of the cancer, or if it has spread or changed or anything… that’s when I’d be more willing to let people feel bad for me, to treat me differently, etc. I do feel like hell right now, but I would feel like it would come across as “crying wolf” – since even though I know why I’m sick, that’s not how everyone else is gonna see it. I reassure people that I’ll let them know if there comes a time when they truly shouldΒ be concerned or worried for me, so I hope they know I mean that.

Meh… anyway… see what I mean about my mood? The same way I ramble about it on here now and then, I just didn’t wanna end up doing that to them last night. (Or to anyone, really…) Instead, thanks to Shannon texting me again this morning to let me know, they all had a good evening. Sharing lots of happy memories and stories about Mom, while still commenting on how it doesn’t seem real, how it doesn’t seem fair, and how as we all get older – how it’s getting harder to escape all of this type of bleh. Having me there, in my condition, certainly wouldn’t have helped to change that opinion.

But with any luck I’ll get to be one of those surprise cases in the future, where we’ll all be sitting around together, upset at whatever injustices we’re seeing or experiencing, but then someone will be able to say “But hey, you had cancer and you’re still here and fine now… so there’s always hope…” πŸ™‚πŸ€·πŸ»β€β™‚οΈπŸ™πŸ»

Bubble Doesn’t Always Work

It’s been a rough, rough week… but I’m not even gonna talk about all of it. I don’t want to take the chance of spreading more negative emotions just because it helps me to get things off my chest. Going to bed early tonight. Hoping for a reset of my body and mind. Glad I made it through the week… sadly, the same can’t be said for one of my old friends from school. He was a couple grades ahead of me, so I was actually closer to his little brother. Definitely one of those things where nobody even saw it coming. But yeah, I’m tired of this week… so the sooner I get to sleep, the sooner it will be over and I can try to start fresh.

Happy (late) birthday, Dad…Β  trying to get good enough where I can visit soon. Sorry… that’s all I can say. 😞

Nerves

As of my last post, I was feeling the then-immediate relief of not having to learn of the plan for my next session of treatment that day. I thought that might make my weekend a little more relaxed, but with each hour closer that Monday gets – the more my nerves started messing with me. 😐 I’m still good, but knowing that tomorrow I’ll be getting the call, it did change what I ended up doing with my weekend.

I’m aware that I could be making a bigger deal out of this than it’s going to end up being, but the alternate is also true… so the best course of action, one that starts me out on better footing before whatever’s next, was to use these two days to get the house nice. πŸ€·πŸ»β€β™‚οΈ I don’t know if it’d be this way for everyone, but if I’m really negatively affected by stopping my thyroid meds (and most everything that I’ve heard so far is that I will be) then it’s important that the house is clean, laundry is done, dishes done up, etc.

It’s simple… feeling shitty feels shitty, but feeling shitty while also being stuck in a dirty house, with unwashed dishes taunting me, baskets of laundry waiting on me… that would just be so much more shitty for me. πŸ˜₯ Like I said, it might not be something that would bother other folks, but it would bother me more than you can even imagine. 😣 One bit of good news, and I’ll give partial credit to the way I’ve tried to keep moving, but I’m finally walking completely without a cane again. πŸ™‚ There’s still some pain, and I can still feel the unpredictable weakness… but it’s good that I’m off the meds I had a bad reaction to, and that I’m getting along much better when it comes to my knee. (Which is surprising, honestly, the way that I pretty much killed it the night that I was in Columbus several days ago.) See, it’s not always bad news around here… 😏

I am disappointed that I wasn’t able to visit a couple people that I had put on the “possibility” list for the weekend if I was feeling alright, but I’m staying hopeful that this next session of treatment will be able to conclusively “clear” me. πŸ‘¨πŸ»β€βš•οΈπŸ₯ΊπŸ™πŸ» Then I can hopefully work at getting my head in a better place again, eventually feeling more like a previous version of me, and potentially more able to make random trips out of the house without the anxiety stopping me before I even make it to the door. πŸ˜‘ As much as I want friends and family to “get me” when it comes to all my twitchy problems, they shouldn’t have to put up with the way that I am as much as they do. 😟 “Clean bill of health” (at least when it comes to my thyroid stuff) could do wonders for snapping me back to something more close to normal. πŸ€•Β That’s the hope anyway…