Still Waiting

I haven’t been avoiding the blog. I just decided that my next entry should be mostly positive, and I’ve yet to have a mostly positive day this week. πŸ€·πŸ»β€β™‚οΈ Going to hit the bedroom tonight before the sun even goes down, add some Tylenol PMs to my night time meds, and hope for a real night of sleep tonight – and maybe tomorrow can be the first decent day of the week. Then after I talk about Friday, I can come back and bitch about Monday thru Thursday. 😏 But yeah… shitty stuff on the news, COVID coming back, crappy sleep, crappy shoulder, annoying stuff to deal with around here, having to disappoint relatives, etc… meh. πŸ˜’

I’m Ready

It’s approaching midnight on Friday, and I think that I’m finally ready to face this week. So, these next couple of hours better watch out, because I’m not feeling too bad at the moment. 😏 Heh… but seriously, this week has felt more “challenging” than usual. Although, as I’m sitting here trying to explain why, I can’t even really think of anything specific that should have made it feel that way. πŸ€”πŸ€·πŸ»β€β™‚οΈ I dunno… I think all the “get ready, we’re opening” talk / news has just made my brain tired and my sleep shitty, which made every other small or “normal” thing feel that much more laborious. (I still got some chores done and got out of the house once or twice.)

But I’m not gonna sit here and try to remember all of the things from the past week that made it suck, ‘cuz I might end up damaging my calm. But yeah, this week… it definitely took me the entire week to be ready for whatever comes – and for the most part, nothing came. πŸ˜πŸ€·πŸ»β€β™‚οΈ So now that the weekend is here I’m much more prepared for it than I was the current week. πŸ€“ Hopefully that makes sense.

Ahh, I do know one thing that has improved my mood over the week… getting my two cats to tolerate each other. 😏 Yeah, I’ve officially adopted Maggie – a cat that I was formerly just babysitting – so it’s been a week of anxiously hoping that her and Maven didn’t feel the need to murder each other. πŸ˜ΎπŸ˜…πŸ™πŸ»πŸ˜Ύ Thankfully, possibly because they’re both too old to be bothered with such things, they don’t seem to have any desire to fight or be a pain in each other’s asses. (Although Maven does grump at her every now and then.)

They’re not even close to being buddy buddy, but they at least tolerate each other. In fact, I think they both actually like that there’s one “other critter” around, even if they don’t necessarily want to interact with that other critter. 😏 I have a short video of them simply sitting upright next to each other, no more than a foot apart, but neither one of them wanting to look at or acknowledge the other… 😁 … but both of them seeming to enjoy the moment in some way. (Purposely “ignoring” each other while making sure the other noticed.)

It would be too much to explain here in the blog, how I ended up with Maggie, but basically I was watching her while her previous owner was moving – but with things not going as planned there, the environment wouldn’t have been great for a kitty who’s already anxious and nervous all of the time. 😳😬 On her first day upstairs she went around the house looking for her former roommates, but once she realized they weren’t here – it’s almost like she felt relieved, because she started actually acting like a cat again rather than just hiding all the time and trying to avoid anything and anyone. πŸ₯ΊπŸ˜Š

Maven and I lead a pretty tame life here in the house, and that’s exactly the kind of life that Maggie needs right now… so it just made sense for me to adopt her officially. It all depended on Maven being okay with it though, and since she hasn’t really done anything to indicate that she objects – it looks like this is a done deal. πŸ™‚ See, just typing about the situation has made me smile… so hopefully I’ll hang on to that feeling through the weekend too. (As long as these two buttholes continue to play nice.)

I Ain’t As Good As I Once Was…

This has been on my mind, so I’mma ramble. πŸ™‚ If we’re able to come to a settlement agreement regarding the medical portion of my claim, I wonder if I’ll be able to eventually undo all of the damage that’s been done. πŸ€”πŸ˜Ÿ Not the physical stuff, of course, since that’ll slowly continue to get worse over the years… but the way the whole process has mentally changed me, especially over the past several years. 😞

It’s just that I’m guaranteed that one week out of every month will be filled with anxiety and stress, simply because I have to get my medications filled. 😐 The meds are required to be covered by my claim, and many years ago I could pick them up without issue – even being able to get them a few days early at times. πŸ€·πŸ»β€β™‚οΈ

Then the problems started. πŸ˜’ Short delays turned into long delays, and long delays became even longer. Eventually the delays were so long that I’d have to pay out-of-pocket just so I didn’t go without, and then wait and hope that I’d get paid back. πŸ˜• If my doctor prescribes a new medication, it can be denied pending an IC hearing. Even when a prescription doesn’t change they can still sometimes deny coverage pending an IC hearing to prove that it’s still necessary. (Which, after a decade, it obviously will be.)

Three weeks of “tolerable” pain at best, followed by a week of worrying, fussing, and fighting just to get the meds that they’re legally required to provide. 😠 Repeat, repeat, repeat, repeat… πŸ™„πŸ˜ž Combine that stress with fluctuating pain and lack of ability, and eventually it consumed so much of my thoughts and time that I started backing away from everything else.

(Don’t mind my rambling… like I said, this blog sometimes acts as my therapy…)

When I can’t guess how I’ll physically feel, and I can’t even count on having (or being able to get) my meds to help… things became too unpredictable to continue like I had been. πŸ™ A couple of years ago I had a long phase where I couldn’t do anything if it meant someone “counting on me” for something. Family started getting shut out, friends definitely got shut out, all because I never knew how I’d feel when I woke up that day nor if I’d be facing (or getting pulled into) another hearing or lengthy process with the pharmacy.

That hasn’t changed. 😐 The concern and worry, that is. πŸ˜’ Along with my family and friends’ understanding, I’ve been able to make some adjustments that has kept me from totally isolating myself these days… but lemme tell ya, sometimes it feels easier to just remove myself from people’s lives than to disappoint them over and over again when things are bad. πŸ₯ΊπŸ˜ž And that leads me back to my original question… how long does it take for a person to escape that mindset, if that 1/4 of each month no longer has that anxiety and stress from the fight? 😐

The stress now, for better or worse, is making sure the settlement (whether an annuity or lump sum) is truly enough to cover the things that it will need to cover. If not, I’ll just be trading the stress of fighting for meds each month for the stress of not being able to take the same meds, because I won’t have the funds to pay for them. πŸ˜’ Medicare is technically supposed to step in at that point, but they’ll require all kinds of proof that I spent the settlement money only on applicable things, and the more expensive meds still might not be covered. πŸ˜– So as you can see, there truly is “always something.”

Kinda makes all the “You’re so lucky that you don’t have to work anymore!” folks reconsider, eh? 😏

Bedtime Ramble

Not sure what was trying to get me, but those two days of cool and rainy weather that I was looking forward to… I ended up feeling like crapΒ on those days. 🀒 I did dump that bag of dirt and grass seed the prior day and did up all my dishes that same night, and it did take a little more “oomph” out of me than I expected – but I think it’s because I was already getting sick,Β and not because of the little bit of work that I did. πŸ€”πŸ€·πŸ»β€β™‚οΈ Regardless, it kinda sucked… but at least the rain was taking care of watering the grass seed, ‘cuz I ain’t gonna. 🀨 Once it’s out there after its initial watering… you’re on your own, blue grass seed… if you’re counting on me to coddle you with things like water, think again. 😏

But, as you may or may not be able to tell, I feltΒ pretty close to back to my normal today. Felt good enough to go have a nice visit with Dad, and when I got back home I found that the lawn guys had come and gone and also didn’t mess with the new dirt and seed. 😌 (Even though they’re probably chuckling that I think the seed will actually grow into grass in the middle of October.) I’m glad I wasn’t here though. I still feel a little weird when someone else is doing the manual labor that I can’t do anymore, while I’m sitting inside like a potato.

But yeah, I’m just glad that I woke up today feeling decent since I had plans today that I didn’t wanna cancel, plans for tomorrow that are somewhat unavoidable, and then doctor appointments on Friday. πŸ™„πŸ€¦πŸ»β€β™‚οΈ I guess I shouldn’t count on my tomorrow and Friday though until they get here… probably gonna jinx myself. 😯

This is county fair week too, and right now I’m only half-convinced that I even wanna go. By Saturday I’ll have had “three days of stuff” in a row, and sometimes after that much “stuff” my energy / neck / shoulder aren’t as cooperative as I’d like. πŸ˜’ So it’s hard to definitely plan on a Saturday fair visit, especially considering that I’d like to avoid the sea of “weekend” humans that would also be turning up.

I actually haven’t checked to see if Jim is coming to town, but if I’m going by myself it would probably be to either take some pictures or to use the 360 video camera to get some footage to upload and share. πŸ€“πŸ“· Both of those things are just better, in my opinion, when there’s less people around. Even among a fair crowd, walking around with a tiny 360 camera on a fully extended selfie-stick still isn’t veryΒ inconspicuous. And people staring slack-jawed and confused at the camera doesn’t make for great video.

And while it’s incredibly unlikely, there’s still a tiny corner of my brain that would love to shoot an early evening time-lapse / light trail type video of the entire fairgrounds from Mt Pleasant. 😌 Ugh… I really wanna do that. 😟 Anybody wanna piggy-back me up the hill? But then I wouldn’t get to walk around and see all the critters, play a few games, and eat something good-yet-disgusting that will have even odds of making me sick. πŸ˜… I think I’ll just see how the rest of the week goes, andΒ figure it out then.

It reminds me the of the irony of my favorite game there though. For as long as I’ve been going, the game where you try to ring the little canes has always been my favorite. Not for the shitty, weird colored cheap canes though… but for the “upper level” canes, which are actually “real” canes where you hook the curved part to win one. 🀨 Nearly every year that I’ve gone, I’ve been able to come home with one of those canes. The irony part… back in the day, the cane would either go into my closet (to be forgotten) or I’d give it to Grandma B, Aunt Carol, or someone else who could actually make use of it. πŸ™‚ But now that I’m older and more broken, if / when I win a cane, it’s more like “Ahh, good, I can leave this one in the car for emergencies.” or “Kewl, now I can have one under the bed in case I wake up and my sciatic nerve is acting up.” 😏

And, you know… (I absolutely don’t feel this way, but I can see where some politically correct folks might) the idea of handing out mobility aids, traditionally meant for temporarily or permanently disabled people, might actually offend one or two people in the state if they thought too hard about it. 😐 It’s like “Throw three darts and break three yellow balloons and you win a skateboard… but if you throw three darts and break three of the tiny red balloons and you win an actual wheelchair!” πŸ‘¨πŸ»β€πŸ¦½πŸ˜•πŸ˜πŸ€·πŸ»β€β™‚οΈ Again, I don’t feel that way… but I’m tempted to google now to see if anyone’s ever complained about this anywhere.

Okay, time for bed… early day tomorrow, and I wanna make sure I stay good with my sleep. I need all the encouragement that I can get, to make sure I’ll get through all of this stuff over the next several days. 🀞🏻

A Little of This, A Little of That

The past several days have been kind of mundane, but I suppose that could be considered a good thing. I did make it out to see Bri on Sunday, and Ariel and the girls were also there when I first got there, so it was nice to get to see all of them in one pop like that. πŸ™‚ Bryson’s growing like a weed, and man is he a happy baby… always giggling and smiling at his mama, and for whatever reason he thought I was particularly funny and worth staring / laughing at for most of the time that I was there too. πŸ™„πŸ˜

Once the week started, everything’s just been kinda meh. Tending to bills, various paperwork, doctor calls, dealing with insurance, dropping off medical release forms at my attorneys’ office, etc. πŸ˜’ I could have just mailed those back to them, but because I let my mail sit for over a week before realizing that their correspondence was in one of those envelopes, I didn’t wanna cause any further delay – so taking the forms directly to them was the quickest option. πŸ€·πŸ»β€β™‚οΈπŸ™‚Β (I wanna do whatever I can to help them help me.)

The bills from the hospital didn’t end up being as bad as I was fearing. Six envelopes arrived from them within a day of each other, all having the same appearance as their typical “amount due” mail… 😟 so I just cringed and put them off to the side for a while, not quite ready to start writing checks. But when I opened them the other night, each one was just a form letter that let me know that because I have a fixed income, their financial assistance program covered the difference between what everything cost and what my insurance actually paid. πŸ˜―πŸ˜ƒΒ Nice to have something go my way, particularly right now.

Then today I had to go to pick up some soda, so I decided to go out to Meijer – where I could also grab a bag of dirt, some grass seed, and a couple bags of pebble-type stone. 🀨 The lawn guys kinda “over-whacked” some weed areas, like around my light post and the clothesline poles out back – so the next time we’re gonna have a few days of rain, I’m gonna try to cover those areas. πŸ€” Nobody was working in their garden department to help me get the bags over to my cart, but luckily I was able to just slide them over from the stack and onto the underneath rack of my buggy. πŸ˜₯ Getting them into my trunk, however… that required creative use of my right arm and right leg.Β (And that crap can stay in my trunk until I’m ready to use it, thankyouverymuch.)

Oh, the pebble stones… that’s for out by my mailbox. When it rains a little more than average, that area turns to slop – and not only does it make it slick for the mailman, but their vehicle also then continues to wear away that spot each time they drive through it. πŸ˜• I put sand there a couple of years ago, but it’s just time for me to try something else. I’m gonna wait until it’s wet for that as well, when I’ll drive my car out to the end of the driveway and just spill the new gravel directly out of the trunk instead of effing with the heavy bags.

But that’s been the tone of the first half of the week… just thinking about or working on “meh” stuff and getting it out of the way. πŸ€·πŸ»β€β™‚οΈπŸ˜ Some good, some bad, but most just “whatever.” I’ve been sleeping in the recliner, and that’s actually helped when it comes to getting sleep and waking up in a little better condition, but I’m starting to miss my comfy bed. πŸ˜΄πŸ’­πŸ›οΈΒ  Β (Well, it’s comfy as I’m going to sleep, at least… heh)

One more night in the chair and then my bed gets another shot. This all makes me sound so old… πŸ˜πŸ€•πŸ‘΄πŸ»
Oh… and my friend had her pacemaker installed yesterday, they had her in and out of surgery before noon, and she was back in her room and texting with me like normal by the early afternoon. πŸ˜ŒπŸ™πŸ» We’re fortunate to live in a time where there’s such a thing as “minor” heart surgery like that. I’ve got a short list of things that I wish we had cures or fixes for though, that’s for sure… but overall we’re lucky with what’s available to us when it comes to procedures and treatments for a whole lot of stuff. πŸ₯πŸ‘©πŸ»β€βš•οΈπŸ‘¨πŸ»β€βš•οΈ

Nuclear Medicine

Had the same lady as last time give me the radioactive iodine dose today. I’m not sure if they all act this way, but she’s fun… not intentionally, but in the way that she makes it feel so dramatic. 😏 And I get it, she works in that department every day, so a person’s gonna want to keep as far away from all the radioactive stuff as possible, so I don’t blame her. πŸ‘©πŸ»β€βš•οΈΒ …Β πŸ₯’πŸ’Šβ˜’οΈΒ Β πŸ€’Β It also has the side effect of making it seem like this pill is reallyΒ going to be doing something, whatever that something may be.

Before they even bring the pill in, she had me go through a practice run – having me put my hands exactly where they need to be, telling me how to get the pill out of the container without touching it or anything else, and then how to gtfo while having to pass near as few people as possible. Of course once the lead container is opened and the pill is out, she stays as far away from it and me as possible – but, probably just from habit, that’s mostly how she acts even through all of the tedious paperwork and talking beforehand.

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Don’t mind how dusty my entertainment screen is (or the custom commands 😏), but I’ve decided to take this as a sign… this was the first song that played (at random)Β in the car as I left the hospital parking lot. (Video Link: Back to Life – Hailee Steinfeld)Β I’ll even give credit to Mom, since I was talking to her on the way in, asking that if she was able to give any help guiding the medicine during the process this morning, that I’d be happy to take it. 😌 Oh, and they remarked how shit my thyroid levels are (in a good way, for the dose/scan anyway) and it’s no wonder I feel like utter shit and fall asleep all the time. So, there’s that. πŸ€·πŸ»β€β™‚οΈπŸ˜Ÿ

Still can’t start up my meds until after the scan, and until after the doctor has reviewed the results to make sure that they “came out okay” for lack of a better term. It’s a typical long test where you have to lie still in a tube for about 45 minutes, so there’s always a chance there could be some sort of blur or error or something, to where they’d wanna do it again in a few days or whatever. 🀨 But with any luck, by this weekend I’ll be on my way “back to life” at least in as far as my thyroid and energy levels are concerned. πŸ€πŸ™πŸ»πŸ™‚

Unfortunately, I’ll have to avoid stuff likeΒ this until I’m less radioactive. 😟 Wish she could understand.

Maybe Nobody Will Notice…

The twitchy snuck up and got me over the past 24 hours. 😟 It’s funny how even being anxious for someone else’s “thing” can cause my brain to act up. My evening meds did zonk me out last night, earlier than anticipated, but I still didn’t sleep through most of the night. I kept waking up every couple of hours, thinking that I slept through my alarms and was gonna be late for Bri’s shower. πŸ˜’Β So, that didn’t help…

But I did get up and make it on time, and I felt about as out of place as I assumed that I would. Dez didn’t make it since she worked the whole night prior, but Bub, Jake, and John were all there… so at least I wasn’t the only d00d there. I dunno… it was fine, Bri was happy, but it was a bunch of people I didn’t know, all the kids running around like tiny crazy people… heh… it just wasn’t for me. In fact, I bailed after an hour. Went outside for a smoke break and my brain was like “Psst… you’re already in your car… you know you could just leave now, right?” 😏 And after messaging Bri to let her know, that’s exactly what I did.

Whatever was wrong with me today, I couldn’t even make myself drive just a couple blocks over to drop off Anna’s birthday card and gift. I just needed to get back home. 😐 Bri understood, and we caught up through messages after everything was done and she seemed happy enough with how things went – and with the goodies that she got. But I know that I’m her person, and sometimes she needs her person… but today wasn’t one of those times, because there was a whole room full of people there just for her. So she didn’t mind that I decided to dip out early. 😌

It’s late in the evening now, but I still haven’t been able to shake this weird mood. I think I’m a bit anxious because I’m behind on some things, and this coming week already has a couple important appointments scheduled, with a couple more calls that I still need to make when I wake up to set up a few more things. I swear though, for someone that’s essentially retired, I sure manage to allow myself to feel a lot of unnecessary pressure sometimes.

Getting By

Heh… I don’t really visit my own site, so I had to chuckle when I clicked over and was reminded that the title of the last entry was “Tired Of This Shit” because I was like, “Yeah, that sounds about right.” 😏

Things have been rough this past week too, because why wouldn’t they be, eh? πŸ™„ Gah… I’m trying not to bitch even more than I already have been, but this week was loaded with appointments – so of course I had to start it all off by being sick. 🀒 You know, I’m not even gonna cover how this week was… I’d rather just be thankful that the week is over, and that I think I’m about back to 100%. πŸ€·πŸ»β€β™‚οΈ Or at least what passes for 100% for me these days.

Only appointment I had to cancel was the dentist, and that’s because it was the first appointment of the week – right when I was feeling my worst, and in the midst of a shitty 36 hours of not being able to sleep. Great way to start the week. I guess there wasn’t anything remarkable about any of the other appointments… if anything, they went pretty good… it’s just been a little exhausting being sick, not being able to sleep, but still getting up around dawn each day to make it to this place or that place.

Today wasn’t bad though. I knew I felt good enough to eat something, even though nothing sounded good, but then since we were out that way we decided to stop at Frisch’s Big Boy for lunch. πŸ™‚ Our eyes were both a little bigger than our stomachs, but at least that meant goodies to take home. Plus we had the nicest, most genuine waitress that I can remember having for a long time.

So now it’s a couple days off before another appointment Monday, and then the follow-up with the endocrinologist later in the week. πŸ‘¨πŸ»β€βš•οΈ Four tubes of blood for several different tests, information from the scan at the hospital a while back… this will be my first appointment since then and, believe me, good or bad, waiting for info like this isn’t easy. πŸ™Β That’s probably part of the reason that I’m having even more trouble sleeping than usual.