Tired of This Shit

I’m not sure how this month’s appointment with the WC doctors is gonna go. πŸ˜• I think I’m actually seeing Dr Walter this time, when it was the new guy that I had the in-depth discussion with about the state of my treatment last month. Regardless, since the WC insurer is coming at me with the shenanigans again, the conversation will have to revolve around that rather than the stuff that I started bringing up last month.

I’ve got to be careful, because it almost feels like a “trap” that WC could use against me, but this month I have to start discussing possible alternatives for the meds that I’m taking right now. Because if they are somehow able to weasel out of paying for what I’m currently taking, the cost of two of those medications would simply be too much for me to continue taking them long term. πŸ™ That’s where the “trap” part comes in.

When I start discussing more affordable potential alternatives for the meds I’m currently taking, I want it to be clear with my doctors and in my records that I have no desire or intention to make any changes now… and that the research and discussion is really just to act as my parachute if I get pushed out of the plane. But I can see where my fear of being forced to pay for my own meds, which has made me research cheaper (but likely less effective) alternatives, means that I nowΒ know that there are cheaper alternatives, so they’ll probably think that they have the right to force me to change to them – despite my preference to keep taking the ones that I’ve been taking. 😏 Heh… I know, that sounds a bit convoluted, but it basically make sense, no?

But until I’m able to discuss this with them, I know that I’m just taking barely-educated shots in the dark when it comes to what might or might not be suitable replacements. 🎯😎 I mean, even though I know that Lyrica has very specific actions – at its most basic level I know that it is considered an anti-seizure / anti-convulsant medication… so that’s where I start looking. πŸ€“πŸ“š And now I have four or five medications that I think could be good replacements… but for all I know, even though they’re anti-seizure, they may have totally different actions – and ones that aren’t even close to being applicable to my situation. πŸ˜’

So for now that’s all I can really do… look for “close” meds and make sure there are more positive side effects than negative. Then I’ll just hope that I’m actually on to something, and that information can be put in my back pocket until it is needed. Between now and then I just have to figure out how to condense all of this crap down into a tolerable three to four minutes. πŸ˜³β±πŸ‘¨πŸ»β€βš•οΈ Gotta impress the importance of this on him, while also not rambling so much that my point gets lost in the noise. I’m better at that than you’d think, actually… it just doesn’t seem that way here because I know I can go on and on about something and it doesn’t matter, since hardly anyone reads this blog anyway. πŸ˜πŸ€·πŸ»β€β™‚οΈ

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Grumble

I had Bri around for a few days. I hadn’t been able to spend much time with her since Christina passed, partly due to schedules, partly due to my radiation stuff still going on… but yeah, the last few days have been nice with her around. I don’t need to entertain her, there was plenty of Netflix, Plex, and YouTube, and we were both probably more productive with whatever stuff we needed to work on than had we not been each other’s company. πŸ€·πŸ»β€β™‚οΈπŸ™‚

Had to wake up before the sun rose this morning, to make sure I’d make it to my 8-o-fucking-clock doctor appointment, and I’m still in a shit mood about it. 😠 I’ve never been excited about any type of mental health care… heh… and I suppose it shows sometimes, but yeah, this was my first real session with a shrink shrink, and getting medications that he thinks will help me be less twitchy. Meh… I’m trying to not even think about it much right now and I’m gonna just see how it goes.

I can’t be bothered with all that stuff right now though because, yet again, I’m doing the monthly fight to get my workers comp medications. 🀬 You know, the same medication that I’m apparently being accused of not getting filled and not picking up like I should. Is that what they’re trying to use against me? That they force me to completely run out and sometimes have to wait days before the next prescription is finally approved? Are they holding that “delay” against me? Yeah, I don’t feel like talking about that right now. πŸ˜’

I swear though, next month’s calendar is already peppered with doctor and other appointments. Half of them are actually still related to the thyroid cancer treatment, but now there’s PCP appt, workers comp doc appt, thyroid stuff, talky shrink, pill shrink… bleh… it’s making me tired just looking at it. Gonna try to continue to make some changes at my next WC appointment as well, which might not go easily… I’m just tired of going to a pain management place while still being in pain each day. πŸ˜– Something obviously isn’t working quite right and I deserve to have it changed in order to improve my treatment and my condition.

Yeah… already done with today, man…

Awesome Timing, Thanks

I went and saw the new “physician’s assistant” fella yesterday. He first confirmed that Dr Walter is still my doctor of record and that everything will still go through him… but hopefully after this initial “getting to know each other” appointment (for which I’m sure he’ll have to confer with Dr Walter at least this time) he’ll be able to handle most everything while leaving Dr Walter’s time free to help patients that can actually still be helped, patched up, or even repaired. That’s where his time should go.

Thankfully though, I really like this guy. Dr Walter and I have a decade of history from me going to that clinic for the same problem… so, obviously, even starting to get new guy on the same page as us would be impossible in one visit. But that didn’t stop him from intently listening to everything I said, as well as already offering his preliminary thoughts and ideas about my condition and treatment. I don’t want to get ahead of myself, but the positive vibes were a pleasant surprise. I mean, it was really a crap shoot (what type of doctor I could have ended up with) but I should have known that their office wouldn’t hire a jackass when not a single one of them already there acts that way.

Okay, so that was the good part of the visit. Nothing has changed yet, but I told him that I appreciated having “new eyes” looking at the situation, and letting him know that I am willing to try changing some things up if he, Dr Walter, and I think that it could help with the problems which have slowly been getting worse over the months and years. I then began the walk to the front of the office to make my next appointment and hit the road, when I was told that Laura, the workers’ comp “saint” of the practice, needed to see me before I left.

She told me that my case manager contacted them and told them that I was non-compliant with my scheduled appointments, and that I was also non-compliant with getting my medications filled each month. Now, Laura has been there since the beginning with me, so she (like me) knew that what the case worker was saying was complete bunk. Before I could even say anything, Laura told me that she had already faxed more than sixty pages worth of documentation to them, to let them know that they are either full of crap and are trying to jerk me around again, or that they are incompetent. (My words, not hers.)Β I mean, how many times have I bitched here myself about how nearly every damn monthΒ I have to make multipleΒ calls, multiple visits to the pharmacy, and often still I’m not “allowed” my medications until days after they’ve forced me to run out?

Based on what they are claiming, they are now only willing to pay for one doctor visit every three months – while certain medications that I take require me to be seen every thirty days. (And it sure sounds like their eventual goal may be to straight up “kick me out” or void their obligation to me.) So, this is what I have to deal with now. And I really need some dumb shit like this, right now, when my plate is already overflowing with stuff that is pushing my health and emotions to their limits.

But that’s what I’ll be doing tomorrow, gathering up all of the current information about whoever is my acting case manager, figuring out which of my attorneys handles this type of issue, and probably trying to figure out how to get records from my pharmacy – and maybe a statement from the pharmacy techs who know how I regularly get the runaround – and get everything in some kind of order, to where I can start making calls on Friday.

I had a good day today, and I do want to blog about it at some point, but I’m still furious about this. Yes, it’s all easily, easily refutable… and there’s absolutely no way that I won’t win if this gets forced into another IC hearing or actual court case… but the fact that I have to do it at all, and that theyΒ stillΒ seem determined to deny me as much of my treatment as they can. I don’t understand how any human could or would take a job like that, where if they complete their task or reach their goal, a person’s life is ruined.

If I keep talking about it I’m not going to be able to sleep again tonight, but that’s the gist of how my Wednesday went. I’m glad Genesee is still in town, because today I had to just pretend that yesterday didn’t happen… just for this one day, so that my brain wouldn’t have a meltdown from immediately trying to fix all of this. I already spent the entirety of Tuesday night through dawn on Wednesday wide-awake, sitting in bed with my phone, looking up countless things regarding my case and treatment, and sending them to the printer so I could compile and highlight them later.

When there is a reliable, well-documented, years-long pattern of delaying or denying a patient’s medication or treatment, when multiple hearings and court cases have already made it clear that the patient is legally entitled to all of it… even if it’s done in a way that technically isn’t in violation of their obligation – you’d still think it might reach a point where a judge would see that it’s nothing less than harassment, and I have to believe that one of that patient’s litigating attorneys would smell blood in the water at that point, so to speak. I’m not a squeaky wheel. Why do they want to push it to that point?

(Okay, tomorrow’s entry will be a positive one. I just had to let this out, for better or worse.)

Expropriated Cycles

This proves that I should always make “after the fact” posts, because despite being all geared up with my medical and workers comp projects, I ended up having Cassi come down and stay over last night… which was actually just the mental break that I needed from all of that stuff. πŸ™‚ I mean, I did keepΒ working on it as she was here, but with her as a distraction it kept it all from consuming my brain and occupying 100% of my thought cycles as I worked. 😳

But while she was here (among other progress) I got names, numbers, and addresses for everyΒ local doctor that may be accepting new patients, everyΒ local urgent care that appears to offer services greater than the “I skinned my knee” or “My butthole really itches” type stuff, and every oral surgeon in the area so I can get more serious about getting my remaining wisdom teefs cut out. 😬 I also got new info from BWC and my BWC Rx provider, so that stuff is in much better shape as well. And the pharmacy was also updated, so my meds might possibly, hopefully, maybe get filled in a more timely fashion. πŸ€¨πŸ‘¨πŸ»β€βš•οΈ

Now that I think about it, I probably got more done with her here than if she wasn’t. 🀨 And without getting twitchy. πŸ€·πŸ»β€β™‚οΈ She worked on several things that she needed to do as well, taking advantage of the relative peace and quiet here compared to her house full of family. 😌 Of course she gave her brain a break as well (the main point of her staying) by making and painting some picture frames, and catching up on the last few episodes of NCIS that she still had to watch on Netflix. πŸ‘±πŸ»β€β™€οΈπŸ“Ί I think Maven was even happy for the unexpected visit, ‘cuz she made up to Cassi way more than usual this time. 😸

We talked quite a bit about what’s going on with my health at the moment, along with all kinds of random thoughts that come along with that topic… so it was nice to be able to talk some of that stuff out with her. πŸ‘¦πŸ»πŸ‘±πŸ»β€β™€οΈ I’m not exactly sure what the plan will be for tomorrow and Friday. 😐 Now that I’ve got all this info compiled I imagine I’ll start calling someone… meh… I’ll figure it out when that time gets here. I’m gonna stay in chill mode for the rest of the evening if possible.

Research

I ended up getting almost 11 hours of uninterrupted sleep last night, likely thanks to my normal evening meds and a couple Tylenol PMs taken at just the right moment. Sadly, I still woke up tired, at least physically… but my motivation game was strong. I guess this was the right day for that combination though, since it’s the weekend and there really wasn’t much that I could do “out and about” to continue my meager progress from last week.

I’ve looked up a bunch of different doctors and “family practice” offices in Lancaster and nearby cities, so I’ll be able to make some calls and maybe even stop by some of these places on Monday. πŸ™‚ I’ve also researched some urgent care places and narrowed it down to two that may be able to help with the tests that I need. 🀨 That’s my backup plan, should the “find a new doctor that doesn’t have a two month waiting list” thing fail. πŸ˜’ And then on top of that I’ve gotten names and info from our local hospital’s site, so I’m prepared to goΒ there to talk to someone about my predicament if need be.

My main concern (after just getting the “serious stuff” started) is doing this in a way that won’t screw me over when it comes to my insurance and the bills. 😳 I assume it’s always like this, since it’s been this way with any insurance that I’ve ever had, but basically you have to jump through all of the required hoops. πŸ™„ Like, you can’t just go to a heart specialist and ask for an EKG without having been referred to that heart specialist by your “normal” doctor. πŸ€” I mean, I guess you can… but your insurance won’t pay for it without the referral.

So yeah, off and on throughout the day was all of that, and then in the evening I remembered that I needed to make a couple phone calls.Β The first was just returning a call from one of my attorneys regarding their recent court actions on my behalf, and the second was to leave a message for the company that I’ve chosen to trim my hedges and spirea bushes, to let them know that I’m on board.

Tomorrow should be a lazy day. 😏 I can’t think of anything that I’ve forgotten, at least not right now, so hopefully I’ll be able to sleep in for a bit before I go to visit with Mom and Dad in the afternoon. If I don’t get too late of a start, I might even try to hit a couple of thrift stores before returning to Maven, the homestead, and a rapidly-approaching Monday morning.

Please Stay On The Line

In an attempt to melt my brain, I guess, I spent most of the day yesterday on the phone and sending e-mails. 😳 Since it’s likely that I’m gonna be getting into a lot more medical stuff in the near future (hopefully) I had to get all my ducks in a row.

First it was making sure my info was current with BWC, and requesting an updated ID card with current information. Then it was checking with my BWC prescription provider and getting an updated card from them. After that it was contacting my Medicare Part D provider and giving and getting the same information with them. πŸ˜“ I also had to get and update information regarding the company and my contact that’s handling my WC claim.

Basically, lots and lots of automated phone systems, auto-reply emails, and eventual communication with actual humans who either handled what I needed or ensured me that the information or cards or whatever that I needed would be sent to me asap. πŸ€·πŸ»β€β™‚οΈ Yeah, we’ll see how that goes… but of every item on my list that I needed to do, I put a check mark next to all of them as either “completed” or “should be completed” pending the USPS bringing stuff to me.

I did all of this while my hands have been driving me insane. 😣 The more that I think about it, the less I think it was just poison ivy. I’m almost certain that it was some other flower or weed with little teeny nettles on it that ended up really fucking up my skin. 😠 If I do manage to make it in to see a doctor at the walk-in clinic tomorrow, I’ll probably ask him or her about it after I get the stuff regarding my thyroid and testing taken care of. πŸ˜” Hell, having such a severe reaction could actually prove helpful to everything in a diagnostic way.

The Moose Out Front

I swear… life is testing me right now.

Monday:

  • Called my doctor to make an appointment about my thyroid. They said the earliest they could get me in was the end of June. The end of fucking June. 😠
  • Looked around and learned that the FMC-linked clinics in town have “Walk-In Wednesdays” for new patients, people that don’t have an appointment, etc. πŸ™‚
  • Oh, and despite being nowhere around poison ivy when I worked in the yard the other day, I now have a bit of poison ivy on both of my hands. πŸ˜‘ Awesome.

Tuesday:

  • Went to the MRI place to have them print out my results for me. Sat for almost an hour before they were able to get that done. πŸ˜’Β (New computers or something.)
  • Now that I’ve been able to read them myself, they aren’t good, but they aren’t necessarily bad bad quite yet. πŸ˜• A little more urgency for the Wed appt now.
  • Received the determination from my Franklin Co Court workers comp case, which is 21 pages long and full of case law and obscene amounts of legal-ese. πŸ€”
  • The results were in my favor, which is awesome, but my mind is still focused on getting up early to make sure I’m at the walk-in clinic on Wednesday when they open. 🀨

Wednesday:

  • Slept about 4 hours (the same as most nights lately)Β then woke up at 4am and waited until close to noon to head in town and get in line at the doctor’s office.
  • Arrived 15 minutes early to an empty parking lot and a sign on the door that said all of the offices were closed today for employee training. πŸ˜πŸ˜‘πŸ˜£πŸ˜‘πŸ€¬πŸ€¦πŸ»β€β™‚οΈ
  • Sat in the parking lot, debating if I should drive around town looking for someone to run down, but decided to go visit Dad instead. (I’ll leave it up to the reader to decide my level of joking on that last comment… heh)

Keep in mind… I’m already twitchy about phone calls and appointments and such, I’m already feeling physically miserable lately, plus I’ve got workers comp shit on my mind. Plus plus I now know what the results of my MRI are, and it’s rather important that a few additional tests are needed sooner than later. 😳

I’m glad that I went out to see Dad though. I had already psyched myself up and found the energy to potentially endure a long, long wait at the doctor’s office – so hanging out for a few hours with Dad, talking, was definitely a better way to spend that time. So I do have those couple of silver linings… the win in court (which, unfortunately, can still be appealed to the Ohio State Supreme Court) and the visit.

I’m taking the rest of the day off now. I’m not gonna think about any of this negative shit for the rest of the day, so that way when I get up tomorrow I can hopefully make some phone calls regarding insurance, cards, workers comp shit, etc. 🀞🏻