Same Ol’ Song and Dance

Ended up staying awake for 28 hours straight, then slept from 8a to 3p today… so now I’m likely to be up all night, which doesn’t really help with my plans for tomorrow in the early afternoon. I’ll keep my fingers crossed regarding that, but man… so glad to finally have my medication in hand. It took some oomph to get up and go in town to get it, but yeah… this month was ridiculous when it came to getting these filled. They weren’t even new scripts, just refills.

If I didn’t know how much I’d hurt, and how negatively my ability would be affected, I’d try to wean myself off of this shit. Not only do I have to go through this routine nearly every month, but in the days leading up to when I call for my refills – I’m already starting to worry what type of clusterfuck will happen this time, that will end up with me going through temporary withdrawals. So basically 1/3 of every month is either spent worrying about my refills, waiting for my refills, or suffering withdrawals from being delayed from getting my refills.

Gah… so tired of it. But yeah, I think frustration built up over the past couple of days, which is why I ended up barfing out those two super-long recent blog entries about all the stuff going on down in Florida. I needed something to take my mind off of how I was feeling, and that seemed to do the trick. But it looks like I’m going to have to set back even more of my meds for the end of the month from here on out. Shouldn’t have to short myself each day just to make sure I don’t run out when I get screwed over, but yeah, I guess that’s what I have to do.

Believe it or not, even though my court case was back in the middle of February, they still haven’t made a determination. That might account for some of the delay, if they were waiting and hoping that I’d lose my right to those meds, but who knows. Whenever I do get a chance to talk to my lawyers next though, I do intend to point out what’s being done each month to see if there’s something that they can do – or even if it could be seen as some sort of spiteful or unjust action that could carry some sort of penalties for them.

Reality tells me there’s not shit they can do, that I can be yanked around basically as much as they wanna yank me around, and that it’s up to me to figure out how to protect myself towards the end of each month. Ahh, what a feeling.

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Faith In Medicine

Got up early yesterday and went and got that steroid injection taken care of. Since I was having it done at a local “surgery pavilion” (yeah πŸ™„ I know) it ended up feeling like the real deal. 😯πŸ₯ I had to strip and change into a gown in the staging type room, got all wired up with sensors and an IV, was rolledΒ way down to a procedure room full of huge lab machines, and when I was done they wheeled me all the way back up to a different area (recovery) where, after having my vitals taken a couple more times, I got dressed again and then had some bloke guide me to the exit. 😳

The doctor that did the procedure is the same one that I’ve been seeing every month for the past decade, so after seeing him for years in “diagnostic mode” – it was kewl to see him in that environment, runnin’ the theater, calling out to either of the nurses for this and that, and then of course jabbing me with needles. πŸ’‰πŸ˜¬ And I’ll admit, some of the stuff hurt a little more than I expected. Kind of like when you get a tattoo on your bicep, the underneath part is super sensitive… well, in order to get me numbed up, the area(s) that he had to hit repeatedly with the lidocaine injections had that same “YOWZA!” effect.

So, the site was numb, and he went in… needle, then saline, then dye, then… oops, a bit of blood. 😯 I’m not sure exactly how bad that could be, but none of them seemed worried and he decided to try one level lower instead. (Which means I had to go through the anesthetic process all over again. ☹ Yay.) This time it went without issue… but let me tell you, it’s quite an unusual sensation having extra fluid (as limited as it probably was) pumped into your spine. It’s like it’s used to a certain “normal” pressure, and that bit of extra… at least for me, it was like someone plopped down on my back for a few minutes. So strange.

My doctor is awesome though… and I’ve probably said that to various people in various places over 100 times by now. 😏 But he talked to me through the whole thing, told me everything that was happening, everything that was getting ready to happen, and then when I was in the recovery room he came out and showed me the pictures, described it all over again to make me feel at ease, and that was about it. πŸ€— There was a lot more “fuss” than I was expecting, but if I notice that it’s making a difference over the next few weeks I certainly won’t object to doing it again when needed. 🀨 ‘Cuz something’s gotta give… something has to eventually work better on me again, right?

The day before all of this, I stopped in again to see Mom and Dad. πŸ‘ͺ As I was telling him about what I was getting ready for, he mentioned the procedure that he was getting ready to have… but he said it in such a “matter of fact / no big deal” type of way that I didn’t really pause to consider the seriousness. πŸ€” More serious than mine, anyway. A heart cath is one of those common-ish surgeries where you just expect that cardiac surgeons can basically do them in their sleep… but each patient can obviously be very, very different – so you can’t really say for sure how safe it is or isn’t. πŸ‘¨πŸ»β€βš•οΈπŸ‘πŸ»

But, and I think it started way back when Mom had a brain tumor removed, for whatever reason I just have a strong faith in medicine, the people that practice it, along with the technology and science behind it. πŸ€·πŸ»β€β™‚οΈ Yeah, I’m all fucked up now, but not because of the fusion surgery… it was because of the delay of the surgery. So that’s why I wasn’t sweating my injection yesterday, and why I’m only slightly sweating Dad’s upcoming procedure. Oh, and you may have noticed that I didn’t mention God in all those things I said have faith in… but yeah, he’s absolutely watching over all of it, for all of us, so while it’s not a guarantee – it does add a subconscious sense of “unconcern” when thinking about it all.

“Wake Up, Case 1485729-4”

Fell asleep around dawn and then was awoken by a phone call from one of my attorneys a few hours later. πŸ˜’ We’ve got quite a bit of outstanding issues right now, and after the long weekend I could almost feel this call coming… so much so that I didn’t turn my ringer off, since I did need to talk to him.

This entry might as well be titled “What Else Is Wrong?” since, in part, it’s essentially going to be a sequel to my most recent post. As you may or may not know, I try to keep my online presence as free as possible from a) bitching about my pain/disability, and b) talking about specifics of my workers comp case. Partially out of pride, partially because nobody really wants to hear about it anyway.

I’m not sure I even remember what I used to be like before all of this dominated my life. I know it’s not pleasant now, to put it extremely mildly, and I know it’s a constant pain in the ass… so even though it’s hard to remember, I do miss the time when my life was my own and I wasn’t being led by the nose through by doctor visits, IC hearings, physical disability, medication requirements, mental stress, pharmacy policies, insurance companies, and now actual an actual court case. 😞

I’m just frustrated because we’re less than two months away from the court stuff starting and so far the settlement stuff is going nowhere. πŸ˜• Their side will submit their brief to the court, my side will have a few weeks to reply, and then it starts getting serious. The court will likely want to depose any doctors that have seen or treated me, on both sides, which means I’d have to hope that I could essentially “rent” my doctor for half a day to give testimony – which would be ridiculously expensive. 😣 (Not to mention ridiculously annoying since he’s already submitted report, after report, after report, in writing.)

So my attorney is going to find out how much they’ve paid each year, on average, for my treatment and medication – and then tomorrow or the next day, when I go to the pharmacy to pick up this month’s meds, I’m going to have them print out what the “out of pocket” cost would be for each medication if I was paying for them with no insurance at all. πŸ€“ With those figures we’ll again try to come up with what we believe is a fair settlement, and then they’ll have to decide if the continuing costs of fighting me are worth it – rather than just settling this and making me go away.

I’m just worried that we won’t be able to get this done before the date of the first hearing. I’m sure it’ll be (us) “Here’s our offer.” followed by (them) “Well, that’s nice, but this is what we’re willing to pay.” followed by (us) “C’mon, get out of here… we need at least (this much)” and then (them) “We’re gonna have to think on this.” with (us) “Well we’re gonna have to think on this too.” Heh… so I don’t know what the odds are of avoiding this court case at this point, but I’d think they are slim.